Thursday, September 12, 2013

Facts You Might Not Know About Spinal Cord Injuries


People with SCI can’t sweat
The spinal cord may be the organ that helps the body feel and move, but it also operates your sweat. Becoming hotter and hotter is what some people with higher spinal cord injuries have to go through until they finally cool off their body from the outside, either by dumping cold water on their skin or basking in the AC. Paraplegics however can usually sweat. Not being able to sweat applies generally to quads.

82% are men
Out of everyone on the planet with a spinal cord injury, 82% are male. That’s quite the disparity between men vs. women and most think feel it’s because men are bigger risk-takers than women. It’s hard to argue with that. Motor vehicle crashes, sports injuries, falls, men find themselves in these situations a lot more often.


Before the 1940s, the life expectancy was two years
There may not be a cure for spinal injuries yet, but scientists have come a long way in improving long-term prospects for people with spinal cord injuries. Prospects before the 1940s were not good. It was before antibiotic use began to be widespread, which mean most died before the two year mark from slow deaths related to untreatable infections; bladder, blood and skin. Paralyzed WWII veterans are some of the first people in human history to move onto full lives post-injury.

Less sensation, less body hair
One of the few bonuses of having a spinal cord injury (if you could call it that) is less body hair. Researchers have recently discovered that body hair grows better when it’s getting feedback from the brain. They’re not sure why, but it’s a phenomenon that’s been observed in most people with a spinal cord injury.

Some people can’t cough
Some people who are quadriplegic may be able to emit a tiny cough, but that’s about as fierce of a cough most of us can do. Reason why – spinal cord injuries don’t just effect the legs and arms, they can affect the chest wall muscles; everything becomes paralyzed below the level of injury. This is why respiratory failure remains the number one cause of death among people with higher spinal cord injuries. Coughing up phlegm is critical when fighting off colds, but the good news – cough-assist devices and techniques like these.

They pee through their belly buttons
Everyone thinks they know the going-to-the-bathroom secret (catheters). But there’s one big secret mainstream society has no idea is possible—a surgery that allows you to pee through the belly button. That’s right, a hole is put in the belly button, with a new urinary conduit to boot. All you need to do is insert in a catheter, put a drainage cup between your legs, and you’re good to go. Doctor Mitrofanoff invented this fascinating surgery.

Their legs can still move
Mainstream society thinks paralysis equates to the legs being absolutely frozen in time—but this is not the case. Some people’s paralyzed legs can move and shake a lot on their own; anything causing pain below the level of injury can cause it. Lower level paraplegics however rarely get spasms.

Wednesday, September 4, 2013

Spinal Cord Injury Information - Will You Stand For Those Who Can't?

Spinal Cord Injury Facts & Statistics


Who Do Spinal Cord Injuries Affect in the United States?
  • 250,000 Americans are spinal cord injured.
  • 52% of spinal cord injured individuals are considered paraplegic and 47% quadriplegic.
  • Approximately 11,000 new injuries occur each year.
  • 82% are male.
  • 56% of injuries occur between the ages of 16 and 30.
  • The average age of spinal cord injured person is 31.
  • SCI injuries are most commonly caused by:
    • Vehicular accidents 37%
    • Violence 28%
    • Falls 21%
    • Sports-related 6%
    • Other 8%
  • The most rapidly increasing cause of injuries is due to violence; vehicular accident injuries are decreasing in number.
  • 89% of all SCI individuals are discharged from hospitals to a private home, 4.3% are discharged to nursing homes.
  • Only 52% of SCI individuals are covered by private health insurance at time of injury.

What Do Spinal Cord Injuries Really Cost?
  • Length of initial hospitalization following injury in acute care units: 15 days
  • Average stay in rehabilitation unit: 44 days
  • Initial hospitalization costs following injury: $140,000
  • Average first year expenses for a SCI injury (all groups): $198,000
  • First year expenses for paraplegics: $152,000
  • First year expenses for quadriplegics: $417,000
  • Average lifetime costs for paraplegics, age of injury 25: $428,000
  • Average lifetime costs for quadriplegics, age of injury 25: $1.35 million
  • Percentage of SCI individuals who are covered by private health insurance at time of injury 52%
  • Percentage of SCI individuals unemployed eight years after injury 63%. (Note: unemployment rate when this article was written was 4.7%)
Source: The University of Alabama National Spinal Cord Injury Statistical Center - March 2002 
 

Number of New Injuries Per Year
32 injuries per million population or 7800 injuries in the US each year
Most researchers feel that these numbers represent significant under- reporting. Injuries not recorded include cases where the patient instantaneously or soon after the injury, cases with little or no remaining neurological deficit, and people who have neurologic problems secondary to trauma, but are not classified as SCI. Researchers estimate that an additional 20 cases per million (4860 per year) die before reaching the hospital.


Total Number of People with SCI
  • 82% male, 18% female
  • Highest per capita rate of injury occurs between ages 16-30
  • Average age at injury - 33.4
  • Median age at injury - 26
  • Mode (most frequent) age at injury 19
  • Motor vehicle accidents are the leading cause of SCI (44%), followed by acts of violence (24%),falls (22%) and sports (8%), other (2%)
  • 2/3 of sports injuries are from diving
  • Falls overtake motor vehicles as leading cause after age 45
  • Acts of violence and sports cause less injuries as age increases
  • Acts of violence have overtaken falls as the second most common source of spinal cord injury
  • Marital status at injury:
    • Single 53%
    • Married 31%
    • Divorced 9%
    • Other 7%
  • 5 years post-injury:
    • 88% of single people with SCI were still single vs. 65% of the non-SCI population
    • 81% of married people with SCI were still married vs. 89% of the non-SCI population
  • Employment status among persons between 16 and 59 years of age at injury:
    • Employed 58.8%
    • Unemployed 41.2%
      (includes: students, retired, and homemakers)
  • Employed 8 years post-injury:
    • Paraplegic 34.4%
    • Quadriplegic 24.3%
People who return to work in the first year post-injury usually return to the same job for the same employer. People who return to work after the first year post-injury either worked for different employers or were students who found work.


How are spinal injuries caused?
Until the most recent figures were released by NSCIA in August, 1995, these were considered as the major causes of spinal cord injuries. See Answer to # 4 and Dr. Wise YoungĂ­s statistics in Section 2 for all the most recent demographics. One of the most surprising findings is that acts of violence have now overtaken falls as the second most common source of spinal cord injury,  as of the 1995 findings.

Previous To 1995:

  • Motor vehicles 48%
  • Falls 21%
  • Sports 14% (66% of which are caused in diving accidents)
  • Violence 15%
  • Other 2%


The Injury
Since 1988, 45% of all injuries have been complete, 55% incomplete. Complete injuries result in total loss of sensation and function below the injury level. Incomplete injuries result in partial loss. "Complete" does not necessarily mean the cord has been severed. Each of the above categories can occur in paraplegia and quadriplegia.
Except for the incomplete-Preserved motor (functional), no more than 0.9% fully recover, although all can improve from the initial diagnosis.
Overall, slightly more than 1/2 of all injuries result in quadriplegia. However, the proportion of quadriplegics increase markedly after age 45, comprising 2/3 of all injuries after age 60 and 87% of all injuries after age 75.
92% of all sports injuries result in quadriplegia.
Most people with neurologically complete lesions above C-3 die before receiving medical treatment. Those who survive are usually dependent on mechanical respirators to breathe.
50% of all cases have other injuries associated with the spinal cord injury.


Most Frequent Neurological Category
Quadriplegia, incomplete 31.2%
Paraplegia, complete 28.2%
Paraplegia, incomplete 23.1%
Quadriplegia, complete 17.5%


Hospitalization
(Important: This section applies only to individuals who were admitted to one of the hospitals designated as "Model" SCI centers by the National Institute of Disability and Rehabilitation Research.)
Over 37% of all cases admitted to the Spinal Cord Injury System sponsored by the NIDRR arrive within 24 hours of injury. The mean time between injury and admission is 6 days.
Only 10-15% of all people with injuries are admitted to the NIDRR SCI system. The remainder go to CARF facilities or to general hospitals in their local community.
It is now known that the length of stay and hospital charges for acute care and initial rehabilitation are higher for cases where admission to the SCI system is delayed beyond 24 hours. Average length of stay (1992):
Quadriplegics 95 days
Paraplegics 67 days
All 79 days
Average charges (1990 dollars) Note: Specific cases are considerably higher.
Quadriplegics $118,900
Paraplegics $ 85,100
All $ 99,553
Source of payment acute care:
Private Insurance 53%
Medicaid 25%
Self-pay 1%
Vocational Rehab 14%
Worker's Comp 12%
Medicare 5%
Other 2%
Ongoing medical care: (Many people have more than one source of payment.)
Private Insurance 43%
Medicare 25%
Self-pay 2%
Medicaid 31%
Worker's Compensation 11%
Vocational Rehab 16%


After the Hospital
Residence at discharge
Private Residence 92%
Nursing Home 4%
Other Hospital 2%
Group Home 2%
There is no apparent relationship between severity of injury and nursing home admission, indicating that admission is caused by other factors (i.e. family can't take care of person, medical complications, etc.) Nursing home admission is more common among elderly persons.
Each year 1/3 to 1/2 of all people with SCI are re-admitted to the hospital. There is no difference in the rate of re-admissions between persons with paraplegia and quadriplegia, but there is a difference between the rate for those with complete and incomplete injuries.


Survival
Overall, 85% of SCI patients who survive the first 24 hours are still alive 10 years later, compared with 98% of the non-SCI population given similar age and sex.


Causes of Death
The most common cause of death is respiratory ailment, whereas, in the past it was renal failure. An increasing number of people with SCI are dying of unrelated causes such as cancer or cardiovascular disease, similar to that of the general population. Mortality rates are significantly higher during the first year after injury than during subsequent years.


_____________________________________________________________________________




Every 48 minutes someone in the U.S. is paralyzed from a spinal cord injury.  Millions worldwide are living with paralysis as a result and living with the knowledge that there is currently no cure for their injury.

In an effort to raise awareness about the critical need for better treatments and preventive measures, September has been designated National Spinal Cord Injury Awareness Month by the U.S. Senate, the result of a resolution co-sponsored by Sens. Marco Rubio (R-FL) and Bill Nelson (D-FL).  To bolster the resolution’s message, we are launching an awareness campaign lasting the entire month of September.

The goal of the campaign is to ask “Will You Stand Up For Those Who Can’t?”  The intent is to create a national conversation about the devastation of paralysis, and to bring this condition to the forefront of public awareness.

“Paralysis does not discriminate.  People need to realize that paralysis can happen to anyone at any time,” said Nick Buoniconti.  “But the reality of today’s statistics can’t be disputed.  Every 48 minutes another person in the U.S. will become paralyzed. That is simply unacceptable. Each of us must do what we can to make a difference.  I am personally asking you, will you stand up for those who can’t and do one or more of the following?”

We are asking our friends and supporters to:
Make a donation in honor of a loved one, caregiver, scientist or organization who is working to improve the life of those injured.  If you would like to host a small fundraising party at your house, please email bfinfo@med.miami.edu and we will send you more information.

“The inspiring work of The Miami Project to Cure Paralysis has touched the lives of millions of young athletes, accident victims and troops in harm’s way and I commend them for it,” said Sen. Rubio. “By designating September as National Spinal Cord Injury Awareness Month, I hope we can further educate the public about how crippling accidents can be prevented while promoting the important work being done to help victims walk again.”

Friday, August 30, 2013

The Nation's Leading Event for People with Abilities -- Abilities Expo in Boston September 20-22

boston abilities expo event for people with abilities september-20-22 vminnewengland.com

BOSTON, August 22, 2013 /VMiNewswire/ -- VMi New England's community of people with disabilities—which also includes families, caregivers, seniors, wounded veterans and healthcare professionals—welcomes the much-anticipated return of the Abilities Expo Boston on September 20-22, 2013 at The Boston Convention & Exhibition Center. Admission is free.

Abilities Expo has enjoyed tremendous success in bringing life-enhancing products and services, education, resources and fun to people with disabilities in Los Angeles, New York, Chicago, Houston, Atlanta and San Jose each year.

The Abilities Expo Boston will feature an impressive line-up of exhibits, celebrities, workshops, events and activities to appeal to people of all ages with the full spectrum of disabilities—including physical, learning, developmental and sensory disabilities.

"We are thrilled for the opportunity to bring Abilities Expo to Boston," said David Korse, president and CEO of Abilities Expo. "We can't wait help people explore the possibilities and open their eyes to all the things they can do."

The Latest Products and Services Attendees will experience cutting-edge products and services for people with a wide range of disabilities. They will find mobility products, devices for people with developmental disabilities, medical equipment, home accessories, essential services, low-cost daily living aids, products for people with sensory impairments and much more.

Relevant Workshops A series of compelling workshops which address pressing disability issues will be offered free-of-charge to all attendees. Sessions will focus on travel, emergency preparedness, therapeutic recreation, thriving as a parent of a unique child, home accessibility, finding the correct mobility device and that is just for starters.

Sports, Instruction, Dancing and More! Abilities Expo does not merely inform, it engages and it entertains. Attendees of all levels of ability will learn the latest hip hop dance moves and play a host of adaptive sports like rowing, power soccer and more. And the kids will love the face painting!

Meet the Animals Animals have become an intrinsic part of the community of people with disabilities. Some are essential to the healing process, while others help their human partners become more independent. Expo-goers will enjoy assistance dog demos, and learn how service monkeys can help people with special needs.

Celebrity Encounters Meet Chelsie Hill, co-founder of the dance sensation Team Hotwheelz and one of the dynamic divas of Push Girls, Sundance Channel's award-winning, boundary-breaking docu-series that traces the lives of four women in Hollywood who happen to be in wheelchairs.

Jennifer French, silver medalist for Sailing at the 2012 Paralympian Games and the 2013 Rolex Yachtswoman of the Year, will conduct a workshop and book signing for her new autobiography, On My Feet Again.

Come to VMi New England's Mobility Center were every day is a Ability Expo

Thursday, August 29, 2013

National Spinal Cord Injury Month: Will You Stand Up For Those Who Can't?

september has been designated by congress as national spinal cord injury awareness month vminewengland.com

September has been designated by Congress as National Spinal Cord Injury Awareness Month. Sponsored by Sen. Mark Rubio of Florida, the resolution notes:
  • the estimated 1,275,000 individuals in the United States who live with a spinal cord injury (SCI) cost society billions of dollars in health-care costs and lost wages;
  • an estimated 100,000 of those individuals are veterans who suffered the spinal cord injury while serving as members of the United States Armed Forces;
  • every 48 minutes a person will become paralyzed, underscoring the urgent need to develop new neuroprotection, pharmacological, and regeneration treatments to reduce, prevent, and reverse paralysis; and
  • increased education and investment in research are key factors in improving outcomes for victims of spinal cord injuries, improving the quality of life of victims, and ultimately curing paralysis.
“Paralyzed Veterans of America is passionate about its commitment to increasing awareness, supporting research to find a cure and advocating for exceptional quality of care for patients with spinal cord injury/disorders
Research into treating or finding a way to reverse paralysis from spinal cord injury is often expensive and hard to come by, involving specialized equipment and staff that many hospitals and research centers cannot afford. Government funding and support, as well as that of the private sector, will be crucial in the search for a treatment for paralysis.
Paralyzed Veterans of America has since its inception supported research in spinal cord science as well as educational initiatives to improve the lives of individuals with spinal cord injury—more than $100 million into research that promises new therapies, treatments and potential cures for paralysis. Top researchers supported by Paralyzed Veterans now confidently speak of a cure.

Friday, August 23, 2013

Boston Abilities Expo 2013

 Boston Abilities Expo September 20-22

For almost as long as we've been servicing and selling wheelchair vans , The Abilities Expo has been improving the lives of Americans with disAbilities, their families, caregivers and healthcare professionals. This unique forum features three days of cutting-edge products and services, compelling workshops, fun-for-the-whole-family activities and has become the leading event for the community of people with disabilities (PWDs).

Abilities Expo reaches out to all ages and all sectors of the Community including wounded veterans, persons recovering from immobilizing accidents, seniors with age-related health concerns, children with disabilities, individuals with mobility and spinal issues, people who have vision and hearing impairments, people with developmental disabilities and many more. Whether your challenges are mild or severe, this is your event.

Exhibitor Profile
Automobiles, van/conversions - Assistive technologies - Bathroom equipment - Beds, furnishings & accessories - Chairs & accessories - Clothing & apparel - Daily living aids - Durable medical equipment - Exercise, recreational, sports equipment & services - Home medical equipment & services - Incontinence products - Insurance & insurance services - Legal services - Publications - Ramps/lifts - Rehabilitative care/services - Residential programs - Seating/positioning systems & accessories - Travel & hospitality services - Wheelchairs, scooters & walkers

Thursday, August 22, 2013

Able Flight Brings Wheelchair user to the Sky



Humanity has always seen flight as one of the most sublime images of freedom in motion. It seems almost unfair that our feathered friends get to move about so quickly to wherever they may please. It seems to be nothing short of magical. Piloting an aircraft was a pipedream for wheelchair users for many a year; that is, until 2006.

Charles Stites founded the non-profit group, Able Flight, for the sole purpose of giving those accustomed to wheels a new pair of wings. Able Flight works to give scholarships to people who have physical disabilities for the purpose of obtaining a Sport Pilot license. Some of the group's funding goes to purchasing special modified aircraft for people with differing needs to have a plane to fly.

Nothing says it better than the mission statement used by foundation: Able Flight's mission is to offer people with disabilities a unique way to challenge themselves through flight training, and by doing so, to gain greater self-confidence and self-reliance.

The program received a special boon in 2010 when a partnership with the premiere Purdue University Department of Aviation Technology took place. Able Flight offers a range of scholarships for students to go learn from the world-class flight instructors at Purdue.

Most flight instruction takes place during the months of May and June, for a total of 5 to 6 weeks. This time covers ground-based classwork and in-flight training, all leading up to the check ride tests. Most flight training is now conducted with Able Flight's joint training program at Purdue University in West Lafayette, Indiana. Career training can take place at a number of locations.

The scholarship types range from a full-ride scholarship for those looking to obtain a Sport Pilot license, to those seeking training for a career working on and with Light Sport Aircraft in either maintenance or dispatching. Another scholarship is made available for those who had a pilot's license and are seeking to get back in the air after an injury.

The requirements are basic as well. Applicants must be a U.S. citizen seventeen years or older with a disability. Recipients have had disabilities ranging from lost limbs and SCI to congenital birth disorders.

Leonardo Da Vinci captured a strong sentiment for those who admire the sky, Once you have tasted flight, you will forever walk the earth with your eyes turned skyward, for there you have been, and there you will always long to return.

Thanks to Purdue University and Able Flight, being in a wheelchair doesn't mean just looking into the sky any longer.

Wednesday, August 21, 2013

September is National Spinal Cord Injury Awareness Month

 

WILL YOU STAND UP FOR THOSE WHO CAN'T?
september is national spinal cord injury awareness month vminewengland.com

Every 48 minutes someone in the U.S. is paralyzed from a spinal cord injury.  Millions worldwide are living with paralysis as a result and living with the knowledge that there is currently no cure for their injury.

In an effort to raise awareness about the critical need for better treatments and preventive measures, September has been designated National Spinal Cord Injury Awareness Month by the U.S. Senate, the result of a resolution co-sponsored by Sens. Marco Rubio (R-FL) and Bill Nelson (D-FL).  To bolster the resolution’s message, we are launching an awareness campaign lasting the entire month of September.

The goal of the campaign is to ask “Will You Stand Up For Those Who Can’t?”  The intent is to create a national conversation about the devastation of paralysis, and to bring this condition to the forefront of public awareness.

“Paralysis does not discriminate.  People need to realize that paralysis can happen to anyone at any time,” said Nick Buoniconti.  “But the reality of today’s statistics can’t be disputed.  Every 48 minutes another person in the U.S. will become paralyzed. That is simply unacceptable. Each of us must do what we can to make a difference.  I am personally asking you, will you stand up for those who can’t and do one or more of the following?”

We are asking our friends and supporters to:
Make a donation in honor of a loved one, caregiver, scientist or organization who is working to improve the life of those injured.  If you would like to host a small fundraising party at your house, please email bfinfo@med.miami.edu and we will send you more information.

“The inspiring work of The Miami Project to Cure Paralysis has touched the lives of millions of young athletes, accident victims and troops in harm’s way and I commend them for it,” said Sen. Rubio. “By designating September as National Spinal Cord Injury Awareness Month, I hope we can further educate the public about how crippling accidents can be prevented while promoting the important work being done to help victims walk again.”